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Muscular Dystrophy News
2 小时
To a parent, the years always seem too short
Columnist Betty Vertin has learned that as a parent, she's finding the years with all her children, including those with DMD, too short.
Muscular Dystrophy News
21 小时
MDA honors researcher, patient advocate with 2025 Legacy Awards
The Muscular Dystrophy Association (MDA) is honoring a longtime researcher and an LGMD patient advocate with its 2025 Legacy ...
Muscular Dystrophy News
2 天
Boys with DMD given Elevidys 2 years ago still showing motor gains
Top-line Phase 3 trial data show ambulatory boys with Duchenne continued with motor improvements two years after a single ...
Muscular Dystrophy News
2 天
How a Singapore ‘Artist’s Way’ program is rekindling my creativity
Columnist Shalom Lim is working with Julia Cameron's popular book "The Artist's Way" as a route to develop his creative self, ...
Muscular Dystrophy News
2 天
Another fall left me feeling like an upside-down turtle
Columnist Robin Stemple has to make yet another adjustment due to FSHD, after a fall left him feeling "like an upside-down ...
Muscular Dystrophy News
7 天
What success looks like for me as a DMD parent
As a parent and caregiver to three sons with DMD, columnist Betty Vertin's definition of what success looks like has changed over the years.
Muscular Dystrophy News
7 天
FDA awards fast track designation to DM1 treatment DYNE-101
The FDA has granted fast track designation to DYNE-101, a therapy for myotonic dystrophy type 1 (DM1) now in testing in a ...
Muscular Dystrophy News
8 天
Marisa Wexler, MS, senior science writer—
The U.S. Food and Drug Administration (FDA) has granted fast track designation to DYNE-101, a treatment candidate for myotonic dystrophy type 1 (DM1) — in which disease symptoms begin during adulthood ...
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